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In the Spotlight

April 14, 2000

Hospice: Providing Support for Patients and Families

By Lee Phillips M.D.
Personal MD.com
Advisory Board

 

Hospice is a special way of caring for people who are terminally ill, and for their family. The philosophy of hospice is to provide support for the patient's emotional, social, and spiritual needs, as well as their medical symptoms as part of treating the whole person.

It is intended for all age groups, including children, adults, and the elderly who no longer desire or can no longer benefit from treatment aimed at curing their illness. The goal of hospice is to enable patients to be comfortable and free of pain, so that they live each day as fully as possible.

Hospice programs use a team approach, including the services of a doctor, nurse, social worker, clergy, and volunteers to help you and your family cope with your illness. Your team and the hospice will work with you and your family to set up a plan of care that meets your needs.

As a hospice patient, you can get comfort care to help you cope with your illness, not cure it. Comfort care includes drugs for symptom control and pain relief, physical care, and counseling. Additional services provided include physical, occupational, and speech therapy; medical supplies and equipment; dietary needs; and continuous home care at times of crisis.

Where would I get hospice care?

Depending on your condition, you may have hospice care in a hospice facility, hospital, nursing home, or even your own home. In fact, many patients want to stay at home so that they will not be separated from family, friends, and familiar surroundings. In this situation members of the hospice team will make regular visits to your house.

A nurse and a doctor are also on call 24 hours a day, 7 days a week to give you and your family support and care when needed. Volunteers are trained to help with everyday tasks, such as shopping and personal care services, such as bathing and dressing. At times another caregiver will provide respite care, so that your or your usual caregiver can rest.

When would I need hospice?

Hospice services are available to persons who can no longer benefit from curative treatment; the typical hospice patient has a life expectancy of six months or less. Even if you live longer than six months, you can get hospice care as long as your doctor recertifies that you are terminally ill. Sometimes a terminally ill patient's health improves or their illness goes into remission.

If that happens, your doctor may feel that you no longer need hospice care and will not recertify you at that time. If you are eligible, you can go back to hospice care at any time. Also, as a hospice patient you always have the right to stop getting hospice care, for whatever reason. If you stop your hospice care, you will get your health care from your original doctor.

Will my insurance pay for hospice care?

For many people, hospice expenses are paid by health insurance plans. Medicare, a health insurance program for the elderly or disabled provides payment for hospice care. When a patient receives services from a Medicare-certified hospice, Medicare hospital insurance pays almost the entire cost, even for some medications that would not be paid for outside a hospice program.

Medicaid, a Federal program that is part of SSA, is designed for patients who need financial assistance for medical expenses. Information about hospice coverage for Medicaid recipients is available from a local public health or welfare office or from the state Medicaid office. Medical costs that are not covered by insurance are sometimes tax-deductible. Local civic, charitable, or religious organizations also may be able to help with hospice expenses.

Where can I get more information about hospice?

The first hospice program in the United States began serving patients in 1974; today more than 3,000 hospice programs across the country offer comprehensive hospice care. Most insurance plans include hospice as a covered benefit.

The National Hospice and Palliative Care Organization promotes and monitors the quality of hospice care. For information about hospice concepts, practices, and referral, go to http://www.nho.org/. Your doctor, nurse, or social worker also can provide information on hospice care.

 

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